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Honesty: the double edged sword

Honesty: the double edged sword

This week has been an amalgam of complex emotions. My blood sugar has been “adjusting” to a new exercise regimen, I have some big plans (relatively speaking) in the works that I am thrilled about but can’t really disclose yet, and of course there was the “hopelash” discussion about the DRI’s Biohub announcement.

I have always sought to be honest and real in my posting, above all else-which I know is partly what interests people in reading my rambling monologues (for some odd reason). I also know that I have a tendency to occasionally speak from raw emotion and that such manifestations of honesty aren’t always as clear as they could be. I have spent a lot of time questioning my reaction to the handling of the Biohub announcement because I feel some of my ire in the moment overshadowed the full scope of my position on diabetes research.

I am not a curmudgeon on a witch hunt. I am a skeptic. I choose not to suspend my skepticism when the words “diabetes” and “cure” appear together in the same sentence. However; I do believe that research is important and that it has given us advancements that we (myself included) benefit from every day and so there is no desire on my part to see support for these efforts abandoned. My issue is with invoking the word “cure” into research pledge drives with seeming flippancy. That sort of messaging pushes my buttons-because a cure is the “low probability/high risk investment” of which I ranted in my previous blog.

The fact that research hasn’t yet given us a cure is not my beef. I know that these things take a long time and that we are constantly learning new things, not to mention getting research past the FDA represents a Gordian knot of red tape-and those are perfectly valid reasons for the rate of progression. When those facts are presented without “sugaring the pill”, that is research that I can get behind-not because of likelihood of success (however that is even defined!) but because I respect a realistic, honest approach in the face of grim odds.

My personal focus in my years with diabetes has never been research; cure-related or treatment-related, because that avenue of progress has not spoken to me, on a visceral level. That fact does not mean that I wish to dissuade others who have a different perspective or motivation in the world of diabetes from supporting research that passes their personal “sniff test”. It doesn’t mean that I consider research to be trivial or unimportant. It simply means that I feel moved in other directions that are less visible to the public and so I have focused the majority of my energies accordingly-and I make no apology for that.

I absolutely believe that while research is one important avenue of progress, it doesn’t (and shouldn’t) represent the whole map to improving life with diabetes. There are so many great things that I have gotten to witness and write about over the last year; programs that help people and change lives here and now-and people and organizations that deserve to be recognized right alongside research because of their impact. To be clear I am not nominating myself or Project365 for inclusion in that category. There are many others I have rubbed elbows with over this past year who motivate that preceding statement.

I have personally been denounced and reviled (sometimes in very colorful terms) for even trying to make my mark in that same arena by doing something that isn’t cure-research related. Seeing people hate you for things they can’t really understand, well it hurts, even if “they don’t matter”. So yeah, the whole cure terminology touches a nerve for me, but I have honestly tried (and I am constantly striving) to make sure that I don’t throw the baby out with the bathwater, and sometimes that objective is harder to meet than others!

I do want to see a complete picture of “getting involved in diabetes” presented to the world and I don’t want to crusade for anything other than people making their own, well informed choices and being positive about and active life with diabetes.

 

 

 

Project 365 questions answered!

Project 365 questions answered!

Anything you would’ve done differently over the year?

Hindsight is 20/20, so there are many things I would do differently. However, I don’t regret any of the decisions I made in regards to the project. This may seem like a negligible distinction but I feel like it is significant. I went into Project 365 expecting to have strikes and gutters-wins and losses. Going back to settle some of the scores of the “losses” would be satisfying on some level but I really feel like the big picture needed to include the struggle and failure.

In responding to this question, I have just written and deleted several things I would have done differently. I really cant see myself doing things any different way! Sometimes I think that I should have shot more photos and video and climbed harder and left the blogging as an afterthought-but if I had done that, I might have missed out on connecting with some amazing people and opportunities. I feel like I could have prepared more in terms of getting sponsors for the project-but if we had everything all locked up beforehand, that would have killed a large part of the story!

A few definite things that I would have done differently though:

  • Use Instagram more! Pictures are worth so much more than words-especially when you are in picturesque locations
  • Spend more time in Yosemite: I got in over my head in the valley and while it was good to test the waters, I could have had a more productive time there if I had gotten my feet wet on smaller objectives before diving in!
  • Spend more time in the Bugaboos with Martin and his family: Logistics limited us in British Columbia time-wise, but the few days we had there unquestionably changed my life.
  • Should have laid out the money for a full frame sensor camera from the get go. Having recently upgraded to the Nikon D600, I now see that I had been rubbing sticks together instead of using a zippo!
  • Should have gotten an iPhone from beginning too. That dramatically increased my ability to keep social media channels updated without having to get stuck behind a computer.

Plans to do something like this again?

Yes. Unquestionably. I have done many multi-month road trips with Stefanie over the preceding years and so Project 365 was more of a culmination of previous efforts than a “new” thing. Through the course of the project I had a chance to meet some amazing T1D climbers, and moving forward I want to take on bigger objectives with them.

I don’t foresee another 365 consecutive day climbing challenge because of the logistics and cost-however I will put this out there (sort of kidding, but also not entirely) that if the funding and logistic support were in place, I would do it again and try to break the 79,000 feet climbed.

My vision is more towards harder, wilder, more remote climbing objectives with other T1s. A few examples of what are in my mind: Patagonia, Yukon Territory, Baffin Island, Greenland, Bugaboos, Himalaya. There is also a great deal of amazing climbing to share as inspiration to the diabetes community in the US too-for me this is a way of life so it never truly stops.

Your favorite day/climb??

Ok, I have to cop out here and say that I can’t select one day or climb. I can try to do a top 5 list:

Did you ever want to give up? What kept you going?

I frequently felt like I was failing completely and despair was rarely far from me. Being separated from my wife, my family and my friends made me feel incredibly isolated despite the fact that I wasn’t always in the backcountry or up on a bigwall. Despite this, I never wanted to give up because I didn’t want to lose everything I had put in. We sold everything we had to take on this project. We left our jobs and home-it was full commitment. There really was no option to give up or turn back. What would we go back to? From the beginning I believed that this project was my path. I did not have a specific vision as to what it would lead to, but I knew that accepting the suffering up front was part of that.

When I signed up for the project I knew the road ahead of me would be filled with both peaks and valleys. Summit experiences are few and far between when compared with the valleys, but that was something I prepared for. Staying task oriented helped me keep going. Instead of thinking about the next month, I would focus on the day at hand, getting climbing done safely and cooking and sleeping. Living on the road added to the process of living and those added tasks helped keep me in the moment when I could have gone crazy worrying if I had let it get away from me.

What kind of vehicle made the trip? Year make model? Did you nickname it something awesome like the “diabetes demon”? The “injection train”?

The first half of Project 365 was taken on in my Toyota Tercel (1987, Wagon). I called it the “Dragon Wagon” which was a reference to it’s bright red color and to a song by a metal band I like called The Red Chord. This car was dear to me, but it was a clunker. It represented more than just a mascot of sorts, it was a rejection of materialism and the idea that doing great things and being healthy are related to how shiny your “stuff” is. It was very sad for me when the Dragon Wagon died in early July, leaving me and my partner Rob stranded in Sioux Falls South Dakota. We had to rent a car and blitz for the east coast in a 23 hour push-without getting a chance to really say goodbye.

What is a comfort that you took with you? Something to keep you grounded when it seems like all hell was breaking loose?

Having the iPhone let me play games on the phone even when cell service was non existent. I was able to keep it charged up thanks to the support we got from Goal Zero and their solar equipment. I am not a big video game aficionado -I stopped caring about video games after SNES came out. Once they went beyond 32 bit graphics, I lost my appetite. However being able to have a bit of mindless entertainment made some of the more dire and lonely situations seem less hopeless. I also brought an MP3 player with me that I have all 7 seasons of “It’s Always Sunny in Philadelphia” on-as well as selected episodes of “Seinfeld”, “Curb Your Enthusiasm” and “Arrested Development”. Driving across Kansas at night (which I did at least 3 times during the year) makes you thankful for a little bit of hilarity to pass the time.

Back to normal!

Back to normal!

Climbing is pretty exciting. So was Project 365. Now I am working on the documentary about the past year called “In the blood”. I think that it will be exciting-or at least engaging once it’s finished. For now though it’s honestly pretty low key. Wading through hours of footage shot without a script or direction, trying to work backwards and put the pieces back together in some semblance of what I experienced.

I am basically reliving the experience-and this process which will take at least several months of steady work, makes me itch to run off to the mountains again. But I am also enjoying the change of pace. It’s very easy to look forward so much that we never get the chance to “digest” our recent past-in a healthy way, not in an “emotional baggage” way…

So as I am sorting through footage and adding photo galleries to the homepage I am in an unusual position: I don’t have a glut of amazing new photos to blog about or a crisis of sorts to share. I am becalmed in a sea of…dare I say…normalcy?

I have been experimenting with new Dexcom sensor placements-I departed from the back of the arm in search of deeper fatty tissue. I decided to try my upper buttock because the sensor would sit below the harness waist belt and above the leg loops. I know the abdomen is the only area approved by the FDA…but until they send the black helicopters to get me for improper sensor location, I am going to find a way, dammit, to wear that sensor in such a way that I can climb at my limit.

To make a long story excruciating, I am not thrilled with the performance of this location although it’s easy to install and seems to be super low maintenance. I have been getting readings all over the map. It’s honestly kind of distracting to be told by this little device that usually is right on the money, that my sugar is 39…when I am driving on the highway and feeling right as rain, with no fast-acting insulin on board!

It has, however, given me a chance to reignite a love affair with my meter. Its funny how I test my blood more now when I am wearing my Dexcom than I would if I were “flying blind”. All told though, it’s exciting to do research on my diabetes and keep fine tuning the system! I know that when I am using the Dexcom outside the recommended sensor sites that I am venturing into murky waters-and so that is some adventure to add to the mix!

Of course I don’t want you all to think that my life is all desk work and computer slavery. I am keeping my list of projects close to home-Zion has no shortage of amazing climbing routes that will challenge and humble me. You may remember this unclimbed boulder problem that I blogged about last week-as well as plenty of bigwall routes. I am hoping to repeat moonlight buttress again this spring and tick off a few other big climbs. They are close to home so I can get after it without having to take much time away from finishing the documentary!

I am hoping to shoot some video on my boulder problem at some point…in the next month or two and share that with you all. I need to get a little further and work out the moves though-at this point it’s all pretty rough! Also my next blog post will address some of the questions I received at the conclusion of Project 365 so stay tuned!

Waiting and flailing: welcome to life.

Waiting and flailing: welcome to life.

The last several weeks have been filled with something I am not accustomed to: waiting. Waiting for the computer to show up. Waiting to download Final Cut Pro to begin editing (it’s not a snap on 256k data speeds!) and most of all waiting to really have a clear vision for making this documentary.

Climbing is something familiar to me. I recognize the dangers and the terrain. This helped me through the project and in many ways, I never doubted that I could go the distance physically. Now I am facing a challenge that has a much less certain outcome!

I have returned to training for future climbing endeavors and I am also preparing for the SoCal Ragnar relay event with the Insulindependence Team. It’s an honor to be joining these folks who are all accomplished runners-and I am WAY outside of my comfort zone in the scope of distance running.

Time spent recently hanging out with the Insulindependence crew and checking out some local surfing!

Time spent recently hanging out with the Insulindependence crew and checking out some local surfing!

I am looking forward to these processes that each have placed me squarely outside of my comfort zone in the Vertical world. That’s what I’ve been preaching, so now I have to embrace that mantra of challenge in all it’s manifestations. I will get my ass handed to me as I train-and I will find value in that process!

I have gotten to spend more time with the Insulindependence community due to the upcoming race and this has led to my thinking about how I can better fit into serving the Diabetes community to really empower people rather than just blog about it. Talk is cheap. So is blog content. Willingness to flail, that’s where all the claptrap begins to take on meaning.

Speaking of flailing, this is my new project, a 5.12 offwidth boulder problem. Got cut down to size this weekend after getting back to Utah!

Speaking of flailing, this is my new project, a 5.12 offwidth boulder problem. Got cut down to size this weekend after getting back to Utah!

Rob taking a spin on the new rig--hand stacks and knee jams. This is climbing, this is war!

Rob taking a spin on the new rig-hand stacks and knee jams. This is climbing, this is war!

I have begun to see that my thinking about all of the aforementioned issues has been limited. Very “in-the-box”. From feeling attached to a very specific type of documentary style for no good reason to thinking of climbing training as pulling down and going up rather than looking at the benefits of cross training and building my weaknesses!

This is a significant moment because I have an opportunity to recognize that things don’t “have to” be any given way. We can build our own construct. Try something different. Push my limits-not in order to find another comfort zone but rather to find greater strength and perspective to keep pushing.

Palm tree at Long Beach airport where I spent many happy hours this past weekend!

Palm tree at Long Beach airport where I spent many happy hours this past weekend!

In the coming weeks I will be seeking the uphill path. I will be frazzled and at times discouraged. But if there’s one thing that diabetes has taught me to accept the failures as part of the context and framework necessary for triumph to exist.

Happy Monday friends; lets not wait or make excuses to buy time. The easy way always leads down and the little things we do, moment to moment add up!

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