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This year I am thankful for…

This year I am thankful for…

A lot has happened in the last week and it has been good-this whirlwind started with my attending a World Diabetes Day event put on by the folks at Roche in Indianapolis. Aside from getting to make a lot of friends, this event really allowed me to see (again) the support and impact that Project 365 is having. It also gave me a greater appreciation for ALL of the people who have done so much to help us keep going.

Sharing a light moment with Rob, the Social Media guru at Roche at the top of the wall. One of many amazing moments that day!

Cherise from DSMA came out and we climbed together! It was really exciting and although I had to do a little arm twisting at first, she totally crushed it and got to the top like it was nothing!

Our sponsors were super helpful in keeping us charged (Thanks Goal Zero!!!)

and fed! (Thanks Clifbar!!!!)

It was so cool seeing this shot Stefanie captured in Moab on a poster! Totally surreal!

More than 150 Roche employees came out to chat with me and share their stories and what this project means to them. I never thought of people who spend every day working to make the supplies that I (and millions of others) use to survive as being affected by diabetes awareness. Sometimes the most obvious things escape me…but it was a powerful reminder of just how far Diabetes reaches beyond those of us who live with the condition personally. Seeing the teamwork and the amount of effort that was put into World Diabetes Day and the climbing wall and the Big Blue Test was awesome! Then, just when I thought it couldn’t get any better, this happened…

In an instant, a LOT changed. I had been constantly wracked with worry about being able to finish the project and I wanted to really be able to focus on wrapping up the climbing and shooting without having to worry about the fund-raising on top of all the other responsibilities I have to cover. Now, I am able to finish the project and there is funding to produce the documentary on top of that once it’s done. I am so thankful for the opportunity to take the next step in Project 365.

Not to be forgotten in the excitement, I want to extend a special thank you to everyone who chipped in to our 100 day challenge. We made huge strides in increasing our Facebook following and each contribution is hugely appreciated. I am grateful for all of the support that has come in so many ways. I have had an opportunity to communicate this to many of you personally and I am looking forward to showing my appreciation by taking what I have been given and making the most out of it.

To whit: some highball bouldering which Stefanie shot-more great captures to add to the over 2 TB of media that we have so far…

Perfect light, perfect timing. College rock, near Boston.

I cant begin to explain how unsavory this topout was. Downclimbing was a much better option.

So, moving forward, I have been in the Boston area and last night I gave a Project 365 presentation to a group of students from Tufts University as a guest of the College Diabetes Network and the Tufts Mountain Club. As with all such events, a lot of work went into coordinating it and I am indebted to Jo Treitman from the CDN and Rose Eilenberg from TMC for bringing it all together. It was my first slideshow (hopefully not the last!) and I am happy to have had an opportunity to present to such a warm and receptive audience. Afterwards we went out to MetroRock in Everett MA and climbed our faces off till 11PM. It was inspiring to see how the act of climbing can bring people together.

Today was day 308 and I went back to College Rock, this time to meet Maria Qadri for some dia-bouldering and top-roping. Maria has been one of Project 365′s most ardent supporters and a fellow T1. We climbed together in the summer in central park and she has been a good sounding board for a lot of decisions I have wrestled with-a very level head and a great perspective on things.

Thanksgiving is up next on the agenda and I have a long list this year…

Climbing>Diabetes (awareness/empowerment)

Climbing>Diabetes (awareness/empowerment)

I recently returned from the Red River Gorge in Kentucky where I got a chance to share Project 365 with a lot of new friends. It was an amazing trip albeit short lived as the hurricane (Sandy) made short work of the beautiful weather we enjoyed initially. As I headed down to Kentucky, I was a bit apprehensive because I didnt have a partner. I just a had a lot of camera gear and desire to climb and capture some exciting footage for the Project 365 documentary.

This actually worked in my favor because in the course of making new friends and finding folks to climb with, the project invariably came up in conversation and everyone I met was really enthusiastic about helping and being involved. I climbed with Emily, Alex, Beth and Toby (Beth is on belay and not pictured here.)

Alex, Toby and Emily

One of the questions Toby immediately asked upon hearing about Project 365 was “how do you plan on raising awareness through what you are doing?” A fair question (and one I got several more times!) and it really inspired me to kick off Diabetes Awareness Month by sharing about my time in Kentucky as well as some thoughts about raising awareness.

Diabetes awareness means different things to different people, just as diabetes itself means different things to each of us. I look at a lot of the awesome initiatives I have seen like the BigBlueTest and You Can Do This and I realize that we all have a role to play in increasing the visibility of diabetes as well as highlighting various elements of life with this condition for the benefit of the public and also for those who live with Diabetes.

I started Project 365 because I felt like it was something that I could contribute to the here and now to help inspire a positive attitude towards living with a thoroughly negative condition. I never felt satisfied with pinning my hopes on future cures and research to solve the problems that we can solve today through our choices-and I have found that many others share this same view! Diabetes awareness and Project 365 will not eliminate the need for test strips and insulin. It won’t eliminate the frustration of high blood sugar readings despite having tight dietary adherence. It wont eliminate the fear of a low blood sugar episode while driving or after getting down off of a climb. Someday science might fix those problems. But in the meantime we have to live our lives in the open, my contribution to awareness is empowerment.

Special thanks to Beth Jackson for capturing these still photos while I was climbing!

Photo by Beth Jackson: almost at the top of the route, Emily is hanging on rappel shooting video. I can tell you that a lot of effort from Emily, Alex, Toby and Beth went into helping out with these shots. This is where awareness begins-reaching out and getting involved!

Project 365 makes a compelling argument that diabetes is not weakness, it is accountability and motivation-two elements which can make you strong if you let them. Empowerment means you get to drive and diabetes takes a backseat to YOU and what you want out of your life. I like to say that I don’t struggle with diabetes, I make it endure ME.

A screenshot of some of the awesome video captured by Emily as I completed my hardest onsight to date, 5.10c. This was significant for me because it means that I was able to climb this entire route, the first time without falling or resting or any pre-inspection!

That message of empowerment for people with diabetes is what I wanted to share a year ago when I was trying to kick off this project and today, 290 days deep, I can tell you that I am more passionate and committed to this vision, having had the opportunity to live it out and share it. My documentary effort, my contribution, is a small piece of the puzzle and I am happy to be part of the growing community of people who are sharing and empowering!

I am very thankful to everyone who has been sharing Project 365, encouraging their friends to like us on Facebook, retweeting, contributing financially, commenting on the blog, and those who have taken their time and effort to help with the physical process of capturing video and photos! You guys ROCK and these are the front lines of awareness and empowerment!

Stay tuned for more. This is going to be a great month!

The great unknown: like online dating but more risky

The great unknown: like online dating but more risky

About a month ago I was frantically scrambling to get back in rhythm with my climbing. Delays with my car’s registration and plates had me pinned down and while I was able to always find something to climb I was falling further off of my edge and I felt like I would never make it into the big mountains-a part of the project that I had been putting off all summer due to other, significantly worthy engagements that kept me in flatter topography.

During this time I received an email asking about the possibility of partnering for some climbing in the Bugaboo mountains in British Columbia from a fellow Type 1 named Martin. Let me back up for a moment and say that the Bugaboos (aka “the Bugs”) have loomed in my imagination as the apex of alpine splendor since day I took the first step forward in the world of climbing and purchased Mountaineering: The Freedom of the Hills and saw the photo of Bugaboo Spire on the cover. I stared at that photo as I purchased that book in 2006 and many times since, wondering how long it would be till I got to go there. The specter of the Bugs bled through into the planning of Project 365 and it was one of the principal places I wanted to share with the DOC (Diabetic Online Community). If you can bring diabetes here, then a whole world of possibility opens up!

Reading Martins email, I was cautiously optimistic. I told him I would get in touch with him once I had definite dates and that we could see what our respective situations looked like at that point. There are lots of complications that can arise from meeting someone online and finding their actual “self” to be much different than their online persona. Given the fact that climbing depends on all of the usual relationship dynamics coupled with putting your life in your partners hands, there was a small part of me that hesitated to move forward with this meeting-lots of what-ifs.

Then there was the issue about the diabetes. PWD are also fickle like the alpine weather, eccentric and OCD. We are difficult and we have our own little ways of doing everything to create normalcy. I have often told people that I am not some super diabetic above the fray of routine-I just have normalized a NEW routine that allows me to be functional in the mountains. Once you adjust, then its all plug and play, even if you’re surrounded by rock on one side and the abyss on the other! At the heart of it all, I am forced to encounter the fact that I am a cantankerous curmudgeon who resists change like the plague. So what if Martin was as difficult as I am? What if his routine and mine didn’t jive?

Im not a self hating diabetic, but this condition is all about calibration and the wrong match up can create challenges. There is no “diabetic diet” or set routine that we all follow. I do things one way, while other people who are striving towards the same goal may do things wildly differently. I am used to being the odd man out and just telling everyone else to do their thing and I adjust and play along, but would that work on a multi-day trip into the mountains with another T1? We would be out there together, depending on a greater level of teamwork, not every man for himself!

The season was late (early Sept) and the fickle weather of the alpine world can be disagreeable even in the summer but the early fall in the low country signals the end of the climbing season in the high country as snowfall ramps up at elevations over 7,000 feet and skiing season takes shape. I knew that I had very little time to dither about and that there would be no second chance at this-I had to hang it out there and take a risk. If Martin and I didnt click properly, if our strategies on climbing didnt mesh, if our experience and skill levels weren’t compatible, we would be in for a rough time or possibly worse. Physical risks aside, the project budget was (and is!) waning and this would have to be a great trip to validate driving 1300 miles.

On the other hand…I just had a really good feeling about this guy-and if I was able to get up there and capture several days worth of footage in the Bugs, it could set a new high point for the project and change the whole dynamic of the film. I assessed the risk and decided that there was more to be gained by at least trying than there was to be lost if we tried and failed.

By the late September I had turned 30, narrowly avoided getting struck by lightning, and had rejoined Stef. There was a weather window that looked to be unseasonably warm and would fall perfectly in line with our arrival in British Columbia. With my wife and partner by my side, I headed north to explore an online relationship in person, prepared to shoulder the risk of any possible result.

If you havent already figured it out from reading these blogs, I am pretty neurotic and I put a lot of pressure on myself. I take things to heart. I overthink things. I was acutely aware that Stefanie had freed up a lot of time from her new job to join me and help with shooting this leg of the trip. There were many dynamics in play and I prattled away incessantly as we drove through Utah, Idaho, Montana and into British Columbia. I found the most easily accessible roadside boulders to climb for my daily ascent and then I returned to the car, trying to verbally account for the fact that Stefanie was getting ill and might have to sit out our climbing adventure in the Bugs.

She had come down with a sinus infection that had never really gone away and I was concerned about it flaring up. We stopped at a grocery store in northern Montana and she grabbed the ingredients for her “secret” home remedy: Lemon, Garlic, Cayenne pepper, Ginger, Honey and vinegar. We drove across the street to a gas station where we got cups of hot water and proceeded to assemble the aforementioned ingredients in the car.

We still had an 8-10 hour drive ahead of us and it was nighttime. We opted to pull off and sleep and let the concoction work and get a little sleep for the next days mission to meet Martin at his parents place just south of our climbing destination in British Columbia. We had no way to know what the next few days would hold for us!

Heading out again! (day 276)

Heading out again! (day 276)

I have been photographing and filming the beautiful fall colors in the northeast as I have been climbing principally in the Gunks on fair weather days and ducking indoors to the Inner Wall in New Paltz, one of our first sponsors, who have been kind enough to support this project. Staying with my dad has limited my ability to blog since he does not have Wi-Fi and the blogs that I want and need to write involved larger photos that are not on my phone and require more bandwidth to upload here.

I know that quietness on the blog front may seem like a lack of activity but if anything, the tremendous amount happening is making me prioritize and stealing my efforts away from writing as much as I would like to. Getting the remainder of Project 365 funded through our final campaign has been a big focus and thanks to generous friends, we are 15% of the way to being able to fund the last several months of this mission.

I try to respond to tweets, retweets, facebook comments and the like, but I want to make sure it is stated here again, that I am SO appreciative of all of the help we have gotten and continue to get-in specific contributions and also in spreading the word and sharing this project. You guys are awesome!

I am hitting the road for a time to get down into the Red River Gorge of Kentucky and possibly other areas of the south east and I am looking for folks to climb with.

I would love to meet up with (for climbing or just for coffee) any members of the DOC. I am looking for partners for weekdays in the Red over the next few weeks and if anyone wants to come out and try climbing and see what this Project is like on the day to day level, I welcome anyone interested. You dont need to be crushing big-number routes or have a ton of experience. There is a lot to do and learn so get in touch if you or someone you know is available to mix some climbing with diabetes!

Lastly…I would like to tell you all to keep an eye on the blog next week because I am beginning to unpack our British Columbia adventure and it is something that will resonate with you if you have enjoyed any element of what has been shared so far! I anticipate several posts on that adventure, so please be patient!

 

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